At Rosie’s 11th birthday party she stood on a picnic table, her trademark red cap on backwards, and said to her friends “As you all know I’m off to Bristol tomorrow, I don’t know what’s wrong with me.”
We ended up belting out the tune ‘stand by me,’ which became her theme song. She really put her own stamp on it, and we had to sing it at every family occasion. When we hear it now, it fills us with pride.
She had complained about pains in her legs before, but the doctor always said it was growing pains, and that we were being paranoid.
But a locum doctor found a lump in her pelvis.
The only thing she got really upset about was losing her hair. It was the first and only time she cried. She never complained, she was always smiling and always laughing. She wasn’t one for self-pity. Years later she was prepared to do a trial drug because they told her she wouldn’t lose her hair – she’d lost it four times before.
The first time she lost her hair she told her mum Tina to go downstairs and have a cup of tea. When she came back up it was all cut off. She and her dad Steven would paint her head so it looked like she had hair.
She craved normality and all she ever wanted growing up was to experience life. We have a large and close family and she loved her family roots. In hospital she always used to say, “I want to be home on Saturday, I’ve got things doing.”
The year after having her pelvis removed, when Rosie was 13, she was selected to go on a dream flight. A group of disabled children went on holiday to America for two weeks and she got to swim with dolphins, which was just amazing.
Rosie’s battle with cancer was really public and she was always in the local paper for her fundraising. We all had to be in Team Rosie for Cancer Research UK’s Peninsula Bike Ride the year after her diagnosis. She raised nearly £1,800 – the most funds of any competitor. She spent part of her 13th birthday walking for Savannah, a seven-month-old girl who was battling leukaemia. And that year Rosie’s unrelenting spirit was honoured by the Cornish Gorsedd, which awarded her the Frank Pascoe Cup for courage and determination in the face of adversity.
The tumour was growing rapidly and she had had enough. They offered her some more radiotherapy, which she did, but then said she didn’t want to do any more. She had a deep understanding of her fate then, which we didn’t know at the time.
She had become friends with film producer Simon Channing. He had seen pieces about her in the local paper and they used to sit down and chat. They spoke really deeply with each other. She couldn’t care less if you spoke with a plum in your mouth or were the commonest person ever. He wanted to do a blog about an adult going through cancer and a teenager, but he got so ill in the end it never happened.
She had nearly seven years of treatment; from the age of 11, it was all she knew. But she still lived her life to the full. She went out, tried drinking, smoking, went off with boys, but I’m glad we let her do that. Lauren experienced all that and it was part of being a teenager.
As tiny as Rosie was she filled the whole house and when she was ill our house was always full. Her personality shone through the most when she was poorly.
A lot of the nurses really struggled when Rosie died, because she was a huge part of their lives. There were 1,500 people in the church for the funeral. They all clapped and applauded her, chanted her name, people in Penzance said it was like Mazey Day. It was a celebration of her life, as tragic as it was, for a child who celebrated all of her life.
Since her death Charlie and Amy hold Rock For Rosie which raises thousands of pounds in her memory. Lots of her friends have been fundraising. Truro College has a Rosie Howis award for people who have overcome difficulties.
As old as she was, Rosie needed us when she was ill. That is why it is important to have a teenagers ward.
We cannot knock any hospital we went to, but Royal Cornwall Hospital was the best. It was not just the treatment, but the fact that we could go to the kitchen and make food. The staff were just unbelievable, as is the way the ward is run. Sue Turk ran that ward to perfection. Everyone knew their place and did their job, but did it with compassion and I didn’t feel like that anywhere else. Dr Gilberston is a very determined and passionate person who knows the job inside out. She wants to be the best and it comes from the heart. Nothing was too much trouble for the people who work there, even when they were understaffed.
For those nurses it wasn’t just Rosie. They deal with this day in day out, year in year out. They have lost children before Rosie and they have lost children after Rosie. They have got to go into work the next day, smile to the parents. To stay strong in a job like that, you have got to be a very special person. They made us feel special and put us at ease.
I will never run the NHS down. They were amazing.
An All-Day Jamathon will be taking place on Saturday 7 July, raising money for LARF!
Toast Bar in Falmouth holds a regular jam session on a Tuesday night, called Jam on Toast, obviously, and this is an extension of that.
Regular players at Jam on Toast include Russell Gibson and Dixie Van Hoorn, who have raised money for LARF before, at Jacob’s Ladder, but they’re hoping to raise even more money this time. read more…